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We are a multidisciplinary group of rare disease advocates, researchers, physicians, and innovators from across the globe with a clear vision to end the long and arduous diagnostic journey.
Throughout the year, the Global Commission will develop and build on a framework to deliver a full resource compendium with case studies submitted by the rare disease community.
A clear path to timely, accurate diagnosis for all children
Learn more about real patient experiences with the diagnostic odyssey.
Patient Experience Story Title
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The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease is an association comprised of a diverse group of organizations and individuals committed to shortening the time for an accurate diagnosis for all children with rare diseases. The views expressed herein are solely those of the Commission and do not represent any individual, co-chair, or member organization’s views or opinions.Â
