Our members continue to share recommendations and progress, engaging with the global community and acting as champions for those living with a rare disease

Recent + Upcoming Events

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Recent + Upcoming Events

  • EURORDIS Events →
  • Global Genes Events →

May 7, 2024
8:00 - 9:00 EST / 14:00-15:00 CEST

ECRD 2024 Thought Leader Session: The Global Commission – Ending the Diagnostic Odyssey for Children with a Rare Disease Register for Zoom Event here.

Recent News

Browse here for the latest news in the rare disease space.