Global Commission

to End the Diagnostic Odyssey for Children with a Rare Disease

A Global Approach to Accelerate Time to Diagnosis

We are a multi-disciplinary group of experts who have
developed a much-needed roadmap to guide the rare disease field in
accelerating the time to diagnosis for children living with a rare disease.
We are a multi-disciplinary group of experts who have
developed a much-needed roadmap to guide the rare disease field in
accelerating the time to diagnosis for children living with a rare disease.

Patient Stories

Learn more about patient experiences with the diagnostic odyssey.

Our Vision

A clear path to a timely, accurate diagnosis for children
around the world.

Latest News

We are optimistic that the Global
Commission's work will transform the
lives of children with a rare disease.

As champions for the millions of people
living with a rare disease, we are optimistic
that the Commission’s work will transform
the lives of children with a rare disease.

Get in Touch

We aim to have a meaningful impact on the rare disease community and want to hear from people who are directly affected by our work.