Global Commission

to End the Diagnostic Odyssey for Children with a Rare Disease

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A Global Approach to Accelerate Diagnosis Time

We are a multi-disciplinary group of creative thinkers who have
developed a much-needed roadmap to guide the rare disease field in
accelerating the time to diagnosis.
We are a multi-disciplinary group of experts
and creative thinkers who have developed a
much-needed roadmap to guide the rare
disease field in accelerating the time to diagnosis.

Latest News

We are optimistic that the Global
Commission's work will transform the
lives of children with a rare disease.

As champions for the millions of people
living with a rare disease, we are optimistic
that the Commission’s work will transform
the lives of children with a rare disease.

Get in Touch

We aim to have a meaningful impact on the rare disease community and want to hear from people who are directly affected by our work.