Header-image
A Framework to Guide Action
in Accelerating Diagnosis for Children
The Global Commission has developed a new framework and is building a resource compendium with input from rare disease champions from around the world.

Click here to download our latest report

Header-image
A Framework to Guide Action in Accelerating Diagnosis for Children
The Global Commission has developed a new framework and is building a resource compendium.

Click here to download our latest report

A Global Approach to Accelerate
Time to Diagnosis

We are a multidisciplinary group of rare disease advocates, researchers, physicians, and innovators from across the globe with a clear vision to end the long and arduous diagnostic journey.

Throughout the year, the Global Commission will develop and build on a framework to deliver a full resource compendium with case studies submitted by the rare disease community.

A Message from our Co-Chairs

Our Vision

A clear path to timely, accurate diagnosis for all children

Patient Stories

Learn more about real patient experiences with the diagnostic odyssey.

Patient Experience Story Title

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Recent News

Browse here for the latest news in the rare disease space.
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Get in Touch

To advance the field, we believe it is critical to learn from peers about how they are making major strides in diagnosis for rare disease.
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Terms of Use

The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease is an association composed of a diverse group of organizations and individuals committed to shortening the time for an accurate diagnosis for all children with rare diseases. The views expressed herein are solely those of the Commission and do not represent any individual, co-chair, or member organization’s views or opinions.