Samuel Wiafe

Executive Director, Rare Disease Ghana Initiative & Clinical Psychologist, Ghana Health Service

Samuel Wiafe is an alumni of University of Ghana and a Clinical Psychologist in Ghana. He has received training in MPS Disorders, Fabry & Gaucher and other Metabolic Disorders from FYMCA Medicals LTD and also completed a comprehensive course in Human Genetics and Genomics as a selective participant in the 4th International Summit in Human Genetics and Genomics held at the National Institute of Health, Bethesda, USA by the National Human Genome Research Institute.

Samuel’s journey in the rare disease space started in early 2017 when he came in contact with a family and had a difficult time finding them the support they needed. After realizing the challenges and the burden of living with undiagnosed and rare disease in Ghana and how rare diseases have been neglected in the healthcare system, he led the establishment of Rare Disease Ghana Initiative (RDGI) to champion the cause and lead advocacy for rare diseases in Ghana.

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To advance the field, we believe it is critical to learn from peers about how they are making major strides in diagnosis for rare disease.

The Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease is an association composed of a diverse group of organizations and individuals committed to shortening the time for an accurate diagnosis for all children with rare diseases. The views expressed herein are solely those of the Commission and do not represent any individual, co-chair, or member organization’s views or opinions.