Global Commission

to End the Diagnostic Odyssey for Children with a Rare Disease

We strive to reduce the time to diagnosis for rare disease patients

News & Updates

February 28, 2020


Global Commission Co-Chairs Featured in WEF Agenda Series on Rare Disease Diagnosis





February 28, 2020


Global Commission Featured in Forbes article on Innovation in Combatting Rare Diseases





February 25, 2020


Rare Disease Day Walk in Dubai





February 7, 2020


Global Commission Presentation at UDNI 8th International Conference on Rare and Undiagnosed Diseases





October 16, 2019


Global Commission Presentation at SMi 9th Annual Orphan Drugs and Rare Diseases Conference





September 23, 2019


Rare Disease Included in the UN Political Declaration on Universal Health Coverage





September 18 - 21, 2019


Global Commission Presentations at European Society of Immunodeficiencies Meeting





September 17, 2019


New Scientific Paper Co-Authored by EURORDIS-Rare Diseases Europe and Orphanet Finds That 149 Rare Diseases Analyzed Affect Around 80% of the Rare Disease Population





April 10 - 12, 2019


Global Commission Representation at World Orphan Drug Congress USA 2019





March 26 – 28, 2019


Global Commission Featured at Microsoft Executive Industry Summit








February 20, 2019


Takeda, Microsoft and EURORDIS release report with action plan to help rare disease community shorten the diagnostic odyssey





February 20, 2018


Shire, Microsoft and EURORDIS form Global Commission to accelerate time to diagnosis for children with rare diseases





News & Media


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