Durhane Wong-Rieger

Chair, Rare Diseases International & President and CEO, Canadian Organization for Rare Disorders

DURHANE WONG-RIEGER, Ph.D. is Chair of Rare Diseases International, President of Asia Pacific Alliance of Rare Disease Organizations, Treasurer of UN NGO for Rare Diseases, Chair of Patient Advocates Constituency Committee of the International Rare Disease Research Consortium, member of the Editorial Board of The Patient- Patient Centered Outcomes Research, member of Editorial Board of Rare Diseases and Orphan Drugs Journal, member of the Global Commission to End the Diagnostic Odyssey for Children with a Rare Disease and member of Health Technology Assessment International Patient /Citizen Involvement Interest Group.

In Canada, she is President & CEO of the Canadian Organization for Rare Disorders, Chair of the Consumer Advocare Network, President & CEO of the Institute for Optimizing Health Outcomes and Chair of Canadian Heart Patient Alliance.  She is a certified Health Coach.

Dr. Wong-Rieger has served on numerous health policy advisory committees and panels and is a member of Canada’s Rare Disease Drug Strategy Implementation Advisory Group, member of Canada’s Rare Disease Network Steering Committee.

Durhane has a PhD in psychology from McGill University and was professor at the University of Windsor, Canada.  She is a trainer and frequent lecturer and author of three books and many articles