Our members continue to share recommendations and progress, engaging with the global community and acting as champions for those living with a rare disease
Recent + Upcoming Events
Recent + Upcoming Events
EURORDIS Events →
Global Genes Events →
May 7, 2024
8:00 - 9:00 EST / 14:00-15:00 CEST
ECRD 2024 Thought Leader Session: The Global Commission – Ending the Diagnostic Odyssey for Children with a Rare Disease Register for Zoom Event here.
Recent News
Browse here for the latest news in the rare disease space.