Alexandra Heumber Perry
Alexandra Heumber Perry is the Chief Executive Officer of Rare Diseases International, the global alliance of Persons Living with a Rare Disease. She has dedicated her entire career to contribute […]
Roberto Giugliani
Dr. Roberto Giugliani, MD, PhD, Full Professor of Genetics and Molecular Biology at the Federal University of Rio Grande do Sul, is a medical geneticist who founded and is an […]
Pamela K. Gavin
Pamela Gavin leads the nation’s leading and longest-standing rare disease patient advocacy organization working at the intersection of care, research and policy for all rare diseases. Pam is an accomplished […]
Kym Boycott
Kym Boycott, M.D., Ph.D., FRCPC, FCCMG, is a Professor of Pediatrics at the University of Ottawa in Canada, where she is a clinical geneticist at the Children’s Hospital of Eastern […]
Gareth Baynam
Professor Gareth Baynam is the Medical Director of the Rare Care Centre and its state-wide clinical service based as the Perth Children’s Hospital; Head of the Western Australian Register of […]
Moeen AlSayed
Moeen AlSayed is a Consultant Clinical Geneticist, working in Clinical Biochemical Genetics and Metabolic Diseases at King Faisal Specialist Hospital and Research Centre in Riyadh, Kingdom of Saudi Arabia and […]
Neil Inhaber
Neil Inhaber, MD, FRCPC, leads portfolio medical affairs strategy development at Takeda with a focus on the planning of product and service launches in the US and internationally. He brings […]
Yann Le Cam
Yann Le Cam is a patient advocate who has dedicated over 30 years of professional and personal commitment to health and medical research NGOs in France, Europe and the United […]
Alaa Hamed
Dr. Hamed is the Global Head of Medical for Rare Disease. Alaa and his team are responsible for expanding the strong legacy of Medical Leadership in Sanofi Rare Disease, focusing […]
